Thursday, May 29, 2014

We technically are just giving it a try, but I don't think there is any going back!

I have been waiting to write this Post for about a month. The reason, well good old Murphys Law... I am not superstitious but boy oh boy sometimes I hate to throw things out there for fear that I will have to go back on what was said... So here it goes...
Our little Ademan who was once a feeding tube baby...
And then a Thick-It baby, meaning all liquids he consumed had to be mixed with a thickening agent.
Is now completely off of the Thick It!

He now drinks all liquids the same as you and I!!! I can't even tell you how exciting this is. He had his first real liquid on his 3rd Birthday. He had a cupcake and juice out of a big boy cup. I don't know who was more excited.. He or I!
We technically are just giving it a try for a month to see how he does. We are now very close to the end of the month and I don't think there is any going back at this point. He is so totally happy drinking juice boxes with his sisters on those warm Spring afternoons. I know it is not all about happiness, it is about wether or not he is tolerating it, but boy I love seeing him that happy. He appears to be doing great, if he has aspirated his body was able to deal with it, without developing Pneumonia... Only once did he start to develop a 'junky' sound in his chest which was actually a few days ago at the start of this little cold we all have. That in itself is huge, the fact that we are getting through a cold, and not using a thickener is just amazing.

This little boy is stronger than I can ever hope to be. He has gone through a lot, and yet his spirits are always so great. Don't get me wrong he is 3, and yes he is good at it! Besides normal 3 year old behavior he is about as happy as they come. And we are one step closer to him living a bit more of a normal life.

11 comments:

  1. You guys are such great parents. Those 3 kids are the luckiest kids in the world!
    I Love You Guys!
    Pops

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    1. Congratulations to all of you. Love, Aunt Linda

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  2. I agree with pops! :) -B

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    1. Thanks B! Friends like you sure help!

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  3. This is great! Remember when they told you he'd be on a feeding tube until grade school?!

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    1. Veronica, right??? I so remember venting to you after they told me that.

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  4. Ditto! I can hardly wait to give him a big smoochie hug & kiss in July... I miss my grandkiddos...
    ILY

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    1. They miss you too... They keep asking when July is...

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  5. Love this! Way to go little guy! So happy that he's getting stronger!

    Julie

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